Just a quick update on the afternoon: The ENT had a spot open today so we popped in. He did see fluid in my girl's ears, and believes that to be the reason for her poor hearing test. He immediately recommended tubes and an adenoidectomy but I'm on the fence. The fluid might resolve, since she does have a cold. Let's not go poking unnecessary holes in body parts. But she's also had a cold off & on since she started daycare a year ago - the fluid might never resolve. Let's fix her hearing NOW so she can understand the words we want her to start saying. Could she have had fluid filled but asymptomatic/non-infected ears for a year? gah. I need to read up on the adenoidectomy more but I missed the part where it Cures Everything! Let's not go lopping off body parts without reason. Also, the ENT seemed to jump on the "kids with Ds usually end up with ear tubes" train which rubbed me the wrong way... my big girl actually has petite tonsils and decent sized ear canals, so let's look at THIS patient, not every other kid with a 47th chromosome, m'kay?
Side note: I left the ENT's office feeling a little jumpy and it wasn't till we nearly got home did I realize it was adrenaline. I had swung into full crisis mode over her hearing and showed up to a bridge party. Funny. Or not.
Also, in a bonus two-fer, we got to the hospital early enough to get into radiology before the ENT. Oh my - that was completely painless! We were in & out in 10 minutes. There's a teensy tiny chance I may have over-built that in my head. Maybe next time we'll consider sedating mommy instead of her weirdly cooperative child? And our ped was already calling with the results by the time we got home - She said there's no instability in her neck but the radiologist saw "something" and couldn't answer my ped's questions (which the ped freely shared her opinion about), so they're sending the films over to neuro-radiology at the children's hospital. Love her!
Because the Xray was so fast, we ended up with almost an hour to kill before the ENT so we got a snack, bought a sample size tube of vaseline for $4 (the omni-chapped cheeks have returned with fall!), and wandered around. 93% of the people we passed smiled at my girl. She was chattering away, looking at everything & everyone while holding onto my pinkie - the epitome of adorableness. We wandered by the peri-natal clinic where I first found out she had an extra chromosome. I felt... light. I half-hoped someone would come out as we strolled by and see a mom & her girl, getting some stuff taken care of, but content and together. And maybe they would see her yummy almond eyes and realize that whatever they'd just heard inside those doors was not the tsunami of darkness they thought it was. They could still stay on the beach and play. And laugh. And have someone hold their pinkie.